Saturday, December 31, 2011

Unhappy about having seizure disorder. Please help?

9 months ago I had a seizure. I was unable to drive for 3 months and went under MRI and EEG tests. Both tests came back negative and was told by my neurologist to just go on with my life and hope that it doesn't happen again, (essentially he wasn't able to figure out why it happened, it just happens to ppl) but then about a month ago I had another seizure. The difference with this one is that 5 days earlier I had run out of my clonazepam (I take it for anxiety, I have serious anxiety and depression) so having stopped the clonazepam cold turkey for 5 days, i felt AWFUL. Dizzy, weird, antsy, panicked, you name it. And ultimately had a seizure. I went back to the neurologist and found out that because I have now had two, I have seizure disorder and was put on lamictal (seizure medication.) They said that I have the predisposition to seizure, yet in both causes it was probably stress and anxiety that simply just triggered it. Next week I am going to have an extensive EEG done where I will have wires on my head for two days, so we'll see what happens with that... but i'm Very unhappy. :( both times it was a very scary experience, i had amnesia for awhile and was rushed to the hospital panicking. My chances of having another seizure in my life are 80%, statistically. I'm scared that it will happen again! I don't want to take seizure meds for the rest of my life! I've gone through so much the last thing i need is epilepsy and to fear having a seizure at anytime. I don't want it to get in the way of my life and hope it does not lessen me as a person. I'm in tears because seizures are hell and if i don't take these meds for the rest of my life i'll probly seizure all the time! FML. Please help.

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